A Down Day

It hits out of nowhere.

Well, not really nowhere because I have PTSD and am fighting an infection which makes me tired and am facing the difficult truth that I a) did NOT develop a new fistula (which means THREE repairs have now failed) and b) I must now make a choice between a really hard surgery and a really, really hard surgery in order to move on with some semblance of life. All around me hard things are happening; deaths, illness, struggles. I feel powerless to help myself, let alone "be there" for anyone else.

So, okay, there's background.

But mostly I think I do a pretty good job of dealing with it. After the initial post-surgery fugue and the inevitable crash when the bad news is first delivered, that is. (Those are really bad days, just ask Jasper.)

After the initial shock, however, after the crying fits and the exhaustion and the utter weariness, there comes a kind of -- well, not acceptance, but sort of an even period of coping. Of just moving on. Realizing that it is what it is and nothing I can do will change it so I might as well get on with things. There comes a sort of equilibrium.

"I'm on the hunt for who I've not yet become,

but I'd settle for a little equilibrium."

-Sara Bareilles, "Hercules"

It's fragile, though, this equilibrium.

Sometimes I know what sets it off. More bad news from the doctor, a horrible news story, that feeling that no matter how hard I try I will never be the mother I want to be. (That last feeling may or may not have been set off today by one of my offspring managing to slip out of the house without brushing her teeth. Again.) Sometimes nothing really sets it off, I just wake up with a weight holding me down, an utter feeling of exhaustion, and the knowledge that today is going to be a Down Day.

In the former circumstance I can more or less deal with it, with help. I can cry and express frustration and talk with people about why I'm upset. In the second, however, I never really know what to say. How do you explain what it's like when everything just feels heavy? When you are so damn tired that even the thought of a shower exhausts you?

These are the days when, if I do make it into the shower, I stand there and cry. For no reason. For every reason. Because-- 

Just because. Because even the shower drains me, and I don't know why.

I hate it; I hate these Down Days. They suck everything into an abyss and I. Just. Can't.

Jasper and I were speaking with a friend once, in the midst of several Down Days, when the bad news just kept coming, when even those we thought understood made it clear they had no clue. We were describing what was happening all around us and to us and in us and I was frantic to be understood, practically frenetic with my need to be understood. And this friend, with infinite love and understanding, looked me straight in the eye and said, "That is really shitty. It is just completely shit."

And I thought, "Yes. Yes, it is." And I began to feel better. Because sometimes, sometimes, everyone just needs someone to acknowledge the poop.

This and That

First, an update.  Many of you will remember my spotty, scarred old toaster from my last post (Ch-ch-ch-changes).  After the new toaster came to live with us, the old toaster took up residence on our dining room windowsill.  There it achieved the status normally accorded a fine piece of artwork; an impressionist-style sculpture, if you will.  Jasper asked me when we were getting rid of it and I shrugged.  What was the rush?

The truth is, I was having trouble letting go.  Yes, it was a ratty old thing, but it wasn't hurting anybody or taking up (too much) space.  It still worked when treated the right way.  It kind of reminded me of myself, actually.  Scarred up and somewhat spotty, but still capable of working, occasionally, when things are going well...

This symbolism was utterly lost on Jasper, who got tired of waiting for me to act and deposited the sad old thing here:

so long, toaster of mine

That point you see in the lower white portion of the bag on the right is the toaster.  Sigh.  Rest in Peace, beloved toaster.

Second, life has been crazy here -- hence no recent posts.  I'd feel really guilty about that, but I know my reading audience is predominately my mom (Hi, mom!) and a few friends, and I figure ya'll can deal with it.

Seriously, though, between the end of school and lousy weather and massive computer problems and several minor crises, I have not been getting very much done.  This, plus a slump into PTSD-inspired lack of motivation, has left me feeling more than a bit slow of late.  You know, like life is speeding by and I'm only catching glimpses of it as it passes, much too late to do anything about it.  Sort of like this:

me on a bad day last week

Other days it seemed I was in the center of the craziness, perhaps acting as the LSD-inspired director of my own comedic failure.  On these days I found myself thinking of the odd-pipe-instrument-playing Bunnies & Dolls Man we saw in Barcelona:

me on a manic day last week

Having the kids home from school added a whole new dimension to my normal craziness.  And, in tried-and-true motherhood fashion, there were several days where I blamed my insanity on them.

do we get a discount if the parents and/or children are already nuts?

Too make matters worse, my new &%$#@! excellent exercise routine, far from helping me feel better, was only serving to exhaust me quicker and earlier as each day went by.  The lowlights of this were the day I pitched a minor hissy-fit to the amusement of several neighbours as I dragged Bubba away from some other dog's poop which he was trying to eat -- do I not have enough poop in my life? -- and the day I was attempting to train him to run next to me while I bicycled.  That ended with me flying tush over head over handlebars.

the best-looking of the resultant bruises

But then the weekend came and I had a good workout.  A really good workout.  Small and puny compared to others of you, I'm sure, but for me it was stupendous.  I hit a new level, broke through a barrier with my aerobic training, made it all the way through my current weights routine without dying, and proceeded to have a very productive day.  Best of all, the next day's workout was just as good!  And I wasn't exhausted!  The fact that I didn't need a nap or want to go to bed at 7 p.m. for two days straight is, for me, phenomenal.  A not-so-minor miracle.

Is it the exercise beginning to pay off?  The prayers I've been uttering much more regularly again?  A lifting of the depression?  Grace being extended?

Probably all of that, and more.

And I needed all of it as Bubba blessed my day this morning by puking all over the living room rug just as we needed to get out the door for an appointment.

still pretty cute for being such a pain in the hiney

Oh well; here's to more of "this" and less of "that".

Some changes are coming to Feisty Broad; a re-vamp of the site will hopefully make it more user-friendly.  Actually, to heck with user-friendly.  I'm hoping it will make it more Broad-friendly!

Ch-ch-ch-changes

For some reason my mother and my husband's cousin think we need a new toaster.  I don't see it, personally.  Sure, there are a few superficial dings on the poor thing, but it still works!  Mostly.  You just have to jiggle the browning knob in the right direction and keep an eye on your bread in process -- don't flip for longer than 20 seconds -- and it's all fine.  Even Little Toot has the process mastered.  So why should we get a new one?

Our much-maligned toaster

This one has character, and history.  Not an incredibly long history, but history nonetheless.  It was purchased in haste about six days after arriving in the Netherlands, as Jasper ran through the store grabbing the absolute essentials.  This was two days after I was admitted to the hospital for emergency surgery (my fifth) and a day after finding out our belongings were being held hostage in Rotterdam due to a paperwork problem.  The many white spaces are from me scrubbing the blasted thing to rid it of the sticky feeling the plastic casing seems to attract; the deep gash is from my mother moving a hot pat too close to it during one of my hospital stays, and the flame-shaped mark is from one of the university students who stayed here while we were in Barcelona; she turned the gas up high in the burner next to the toaster.

Like I said, it has character.

But mostly I'm used to it.  I know its tricks, know how to treat it, know what to do with it.  It might be a pain, but it's MY pain and I can deal with it.  Who knows what a new, pretty, proper toaster might do with our bread?

Unfortunately, fate has dealt us a cruel blow.  K, the above-mentioned cousin, and her husband and beautiful son are moving from Belgium -- where they have lived a mere two hours away from us for the past three years -- back to Canada.  We're sad about them leaving, sure, but the real issue is that K has bequeathed her new, pretty, proper toaster on us.

What am I supposed to do with this?

It's not sticky, won't melt, and actually toasts bread.  What the heck am I supposed to do with it???

Change is hard, even when it is good, or even needed.  Some of us are better at rolling with the punches, taking what comes our way.  Others of us need time to adjust.  And sometimes, whether we want the change or not, whether we're easy-going or uptight, change is just downright hard.

Over the past couple of weeks I have been asked several times how I'm feeling, how the latest surgery turned out, what I'm able to eat now, what the next step is.  I made no secret going into this surgery that I was hoping and praying it would be my last, that I had had enough, that I was ready, willing, and prepared to do whatever need be afterward to be healthy and -- hopefully -- avoid further problems.  Now, on the other side, I have to live up to those words, to that desire, and it means some changes which I'm finding difficult.

The hardest outward change is the exercise.  I've always tried to exercise and be healthy.  At various times in my life I've run, walked, done aerobics, biked.  Most recently I've done Pilates and yoga, a lot of walking and biking, and basically trying to be more active.  Now, however, my internist has informed me that the exhaustion I have been increasingly fighting for the past few years is not "simply" due to illness and stress, although those are obviously major factors in the equation.  She thinks my body has aged too rapidly due to all the surgeries and medications over the past eight years.  In short, my body thinks it is 50 or so, while I, in actuality, just turned 40.  Of primary concern is my bone density, despite the amount of calcium I ingest.  The treatment?  Intensive weigh-training three times a week, in addition to my other exercise, a careful diet, maintenance meds, and so forth.

Yeah.  Um, weight-training.  This is so not how I want to spend a significant chunk of time three days a week.

The harder change, however, is the internal change.  Because, as bizarre as it may sound, I have gotten used to Sickness Mode and even Crisis Mode.  I know what to do, how to make myself rest, how to not plan too far ahead (and not from a healthier "be here now" perspective, either!).  I know how not to get too excited, how to be careful, how to monitor every tiny change in my appetite, sleep, output (that means poop, people), mood, hormones, emotions.  I know the ups and downs of PTSD intimately.  And as much as I want out of these modes, as much as I want my life back -- or, dare I hope for it? -- even a better life, this way of thinking about things, this way of life, has been "normal" for so long that I am not even sure I know how to change it, or if I can -- or if I even totally want to.

Of course I want to.  It's just that I've gotten used to the stickiness, gashes, and melted spots.   I'm used to it.  I know its tricks, know how to treat it, know what to do with it.  It might be a pain, but it's MY pain and I can deal with it.  Who knows what a different life might bring?

Wait, I got a bit confused there.  Was I talking about my health or my toaster?

Either way, change is happening.  And change is, in this case, not only wanted but needed.

So here's to change: may it bring health, may it reside in strength, may it not hurt too, too much, and may it not forget the lessons I have learned and benefits I have gained.  To change!

What internal barriers to needed change are you harboring?

Little Things

Yesterday was my two-week post-op appointment.  I drove because I'm not capable of biking too far yet.  Unfortunately, the parking garage was shut down due to to construction and I landed in the midst of a huge snarl of cars, delivery vehicles, bikes, workers, and out-lying overflow parking.  The frustration began to rise; I was going to be late.  I hate being late.  "Calm down," I told myself.  "The staff knows this is going on, they won't hold it against you."

I wove my way through the overflow parking, dodged past the smokers gathered in the no smoking area immediately outside the hospital doors, and trucked it through the hallways as quickly as I could.  The receptionist at the poli chirurgie (surgery desk) greeted me with a large smile and a commiseration about the parking situation.  My breathing began to normalize and I gave myself a mini-lecture along the lines of "you really need to calm down about little things like parking delays and be happy that you're doing well and this appointment will lift restrictions and you can move on with life".  The receptionist looked up, frowning, and informed me that someone had called and cancelled my appointment.

Me at Christmastime after my sixth surgery, trying to smile for the girls

and be happy so they wouldn't worry about how poorly I was doing.

Obviously, I didn't quite pull it off.

That was all it took; the shaking started.  I countered that I certainly hadn't called and cancelled the appointment, the receptionist insisted that I must have, I asserted that NO, I certainly had NOT and YES I needed to be seen TODAY and not in another two weeks at my four-week post-op appointment (which mysteriously was still on the books).  We went back and forth for a few minutes, both insistent, and then she sighed and told me to have a seat and she'd ask a doctor what he/she thought should be done.

Collapsing in the nearest chair, I leaned forward so the tears which had begun to stream down my face would be less noticeable.   Too late.  After I wiped my eyes with a tissue, commanding myself to breathe slowly, I looked up to find several people gawping at me.  One woman had an expression of muted horror on her face; only one man, an elderly gentleman, gave me a small smile of sympathy.

Welcome to the world of PTSD.  It was months after my first surgery (the one which saved my life and then almost killed me again) before I could enter the hospital back in Kingston without suffering a full-blown panic attack; years before I could enter without having to do deep-breathing exercises.  Such a little thing, a clerical mistake with an appointment, but because it is linked to such big, complicated things -- illness, fear, pain, death -- it opens the door to a terror which is, much of the time, hidden deep within me.

In the afternoon -- having been seen by a sympathetic surgeon who proclaimed me doing well and lifted the post-op restrictions -- I took Bubba to the dog park.  The sky was blue with great, blustery clouds tossing across and there was a brisk wind up on the hill; it was glorious to walk around, pet the dogs, gaze at the flowers and the city in the background.  Bubba bounded off through the long grasses; half the time all I could see was his tail bouncing along.  The wind blew harder, whistling in my ears, and a black streak rushed past me, then turned and came back for a pat and a snoepje (dog treat).

Bubba

We rounded the far side of the hill and came out on the top of the plateau.  A pack of dogs was happily rolling around and Bubba raced off to join them.  The pack took off: running, jumping, rolling, wrestling, running again; it was a great mess of quivering canine happiness at being out in the sun, playing.  I broke out into loud laughter at the delight of it all.

Such a little thing, a bunch of dogs playing, but because it is linked to nothing complicated or hard -- because it is such a little, simple, wonderful thing -- it took my breath away with the sheer joy of it.

The other dog owners nearby turned to look at me, every single one of them smiling, and then we all stood and watched our dogs and laughed, long and hard, until the tears came to our eyes.

What little thing brings you joy no matter what else is going on?